Uncovering the Unknown Patient. Exploring 19th-Century Patient Registers from Dutch Hospitals
DOI:
https://doi.org/10.52024/hlcs26146Keywords:
Hospitals, Patient registers, 19th Century, The Netherlands, Health, DatabaseAbstract
This article explores the use of 19th-century patient registers for historical research, focusing on a case study of several hospitals in the Netherlands. These patient registers offer a unique combination of extensive personal data (e.g., name, age, sex, occupation, marital status, religion) and medical and clinical information (e.g., diagnosis, length of hospitalization, and treatment outcomes). Although these sources hold immense potential, they remain significantly underexplored. This article situates these registers within their historical context and evaluates their availability, structure, reliability, strengths and limitations. Building on experience with constructing and utilizing patient register databases for hospitals in Amsterdam, Groningen and Middelburg, the article explores both the challenges and opportunities involved in digitizing and analyzing data from patient registers. This article shows how these records can be used to broaden our understanding of institutional healthcare, patient demographics, health inequalities, disease patterns, and life courses. By doing so, it aims to demonstrate the value of these underexplored sources for advancing the study of the history of health, medicine and patient care.
Downloads
References
Bates, B. (1992). Bargaining for life: A social history of tuberculosis, 1876–1938. University of Pennsylvania Press.
Brändström, A. (1988). The silent sick. Life-histories of the 19th century Swedish hospital patients. In A. Brändström & L.-G. Tedebrand (Eds.), Society, health and population during the demographic transition (pp. 343–368). Almqvist and Wiksell International. https://umu.diva-portal.org/smash/record.jsf?pid=diva2%3A1111583&dswid=7591
Brändström, A., & Broström, G. (1989). Life-histories for nineteenth-century Swedish hospital patients: Chances of survival. Journal of Family History, 14(3), 195–209. https://doi.org/10.1177/036319908901400302
Cherry, S. (1980). The hospitals and population growth: Part 1 The Voluntary General Hospitals, mortality and local populations in the English provinces in the eighteenth and nineteenth centuries. Population Studies, 34(1), 59–75. https://doi.org/10.2307/2173695
Craig, B. L. (1989). Hospital records and record-keeping, c. 1850–c. 1950, Part I: The development of records in hospitals. Archivaria, 29, 57–87. https://archivaria.ca/index.php/archivaria/article/view/11609
Craig, B. L. (1990). Hospital records and record-keeping, c. 1850–c. 1950, Part II: The development of record-keeping in hospitals. Archivaria, 30, 21–38. https://archivaria.ca/index.php/archivaria/article/view/11660
Cullis, P. S., & Young, D. G. (2013). Nineteenth century mortality at the Royal Hospital for Sick Children, Glasgow. Scottish Medical Journal, 58(3), 182–187. https://doi.org/10.1177/0036933013496937
Diepgrond, N. (2021). Een poort naar de dood en verblijfplaats van 'ongelukkigen'?. Een onderzoek naar de patiënten en sterfte in het Amsterdamse Binnengasthuis in de tweede helft van de negentiende eeuw [A gateway to death and abode for the 'unfortunate'? A study into the patients and mortality in the Amsterdam Binnengasthuis in the second half of the 19th century] [Unpublished master's thesis]. Radboud University Nijmegen.
Diepgrond, N., & Riswick, T. (2026). From sick bed to death bed? Patient composition and mortality in the Amsterdam Binnengasthuis, 1856–1896. Social History of Medicine, 39(1), 206–234. https://doi.org/10.1093/shm/hkaf046
Duffin, J. (1993). Langstaff: A nineteenth-century medical life. University of Toronto Press.
Dumănescu, L., & Hegedűs, N. (2025). From the patient registry to the patient history: Individuals and diseases in a Transylvanian hospital in 1877. Social History of Medicine, hkaf027. https://doi.org/10.1093/shm/hkaf027
Dupree, M. W. (1993). Family care and hospital care: The 'sick poor' in nineteenth-century Glasgow. Social History of Medicine, 6(2), 195–211. https://doi.org/10.1093/shm/6.2.195
Granshaw, L. (1985). St Mark's Hospital, London: A social history of a specialist hospital. Oxford University Press.
Henderson, J., Horden, P., & Pastore, A. (2007). Introduction. The world of the hospital: Comparisons and continuties. In J. Henderson, P. Horden, & A. Pastore (Eds.), The impact of hospitals, 300–2000 (pp. 15–56). Peter Lang.
Maeda, H. (2016). The discovery of mental hospital patients: A historical epidemiology of institutionalization in the American North, 1880–1920. Social Science History, 40(3), 463–490. https://doi.org/10.1017/ssh.2016.14
Horrent, Y., Oris, M., Servais, P., & Velle, K. (1994). La population des grands hôpitaux universitaires belges du début du XIXe à la fin du XXe siècle [The patient population of Belgium's major university hospitals from the early nineteenth to the late twentieth century]. Annales de Démographie Historique, 1994, 217–236. https://doi.org/10.3406/adh.1994.1869
Howell, J. D. (1995). Technology in the hospital: Transforming patient care in the early twentieth century. Johns Hopkins University Press.
Imhof, A. E. (1977). The hospital in the 18th century: For whom? The Charite Hospital in Berlin, the Navy Hospital in Copenhagen, the Kongsberg Hospital in Norway. Journal of Social History, 10(4), 448–470. https://doi.org/10.1353/jsh/10.4.448
Jacyna, L. S. (2004). The localization of disease. In D. Brunton (Ed.), Medicine transformed: Health, disease and society in Europe 1800–1930 (pp. 1–30). Manchester University Press.
Kooij, P. (1986). Groningen 1870–1914: Sociale verandering en ecnonomische ontwikkeling in een regionaal centrum [Groningen 1870–1914: Social change and economic development in a regional centre] [Doctoral thesis, University of Groningen]. https://hdl.handle.net/11370/837be39e-42ce-48eb-a162-131bfd0187a2
Lammertink, O. (2023). De opkomst van het moderne ziektepatroon? Doodsoorzaken, degeneratieve aandoeningen en sociale ongelijkheid in Amsterdam, 1854–1926 [The rise of the modern disease pattern? Causes of death, degenerative diseases and social inequality in Amsterdam, 1854–1926] [Doctoral dissertation, Radboud University Nijmegen]. https://repository.ubn.ru.nl/handle/2066/292090
Lorkowski, J., & Pokorski, M. (2022). Medical records: A historical narrative. Biomedicines, 10(10), Article 2594. https://doi.org/10.3390/biomedicines10102594
Nocera, A. (2010). Performance-based hospital funding: A reform tool or an incentive for fraud? Medical Journal of Australia, 192(4), 222–224. https://doi.org/10.5694/j.1326-5377.2010.tb03483.x
Nuttall, A. (2007). 'Because of poverty brought into hospital: ...' A casenote-based analysis of the changing role of the Edinburgh Royal Maternity Hospital, 1850–1912. Social History of Medicine, 20(2), 263–280. https://doi.org/10.1093/shm/hkm042
Perner, M. V., & van Wijhe, M. (in press). Hospital records as a source on morbidity and mortality in the past. Copenhagen's epidemic hospital and its patient journals, 1879–1910. Historical Life Course Studies, 16.
Porter, R. (1985). The patient's view: Doing medical history from below. Theory and Society, 14(2), 175–198. http://www.jstor.org/stable/657089
Querido, A. (1960). Godshuizen en Gasthuizen [Almshouses and Hospices]. Em. Querido's Uitgeversmaatschappij.
Radkau, J. (2001). The neurasthenic experience in Imperial Germany: Expeditions into patient records and side-looks upon general history. In M. Gijswijt-Hofstra & R. Porter (Eds.), Cultures of neurasthenia. From Beard to the First World War (pp. 199–218). Brill.
Reid, A., Garrett, E., Hiltunen Maltesdotter, M., & Murkens, M. (2025). Historic cause of death coding and classification scheme for individual-level causes of death - Manual. Apollo - University of Cambridge Repository. https://doi.org/10.17863/CAM.109960.2
Risse, G. B. (1986). Hospital life in Enlightenment Scotland. Care and teaching at the Royal Infirmary of Edinburgh. Cambridge University Press.
Risse, G. B. (1987). Hospital history: New sources and methods. In R. Porter & A. Wear (Eds.), Problems and methods in the history of medicine (pp. 175–203). Routledge.
Risse, G. B., & Warner, J. H. (1992). Reconstructing clinical activities: Patient records in medical history. Social History of Medicine, 5(2), 183–205. https://doi.org/10.1093/shm/5.2.183
Riswick, T., Murkens, M., & Diepgrond, N. (2024). Aanstaande moeders in nood. Patiënten op de kraam- en gynaecologieafdelingen van het Amsterdamse Binnen- en Buitengasthuis, 1856–1896 [Mothers-to-be in distress. Patients in the maternity and gynaecology wards of Amsterdam's Binnen- en Buitengasthuis, 1856–1896]. In A. Leemans & C. van Tilburg (Eds.), Geschiedenis van de geboorteregeling en familieplanning (Cahiers Geschiedenis van de Geneeskunde en Gezondheidszorg). Antwerpen: Garant.
Rosenberg, C. E. (1977). And heal the sick: The hospital and the patient in the 19th century America. Journal of Social History, 10(4), 428–447. https://doi.org/10.1353/jsh/10.4.428
Sadowsky, J., & Smith, K. (2024). Reflections on the use of patient records: Privacy, ethics, and reparations in the history of psychiatry. Journal of the History of the Behavioral Sciences, 60(1), Article e22260. https://doi.org/10.1002/jhbs.22260
Savona-Ventura, C. (1995). A maternity unit in Gozo a hundred years ago. Maltese Medical Journal, 7(1), 55–61. https://www.um.edu.mt/library/oar//handle/123456789/680
Sigsworth, E. M. (1972). Gateway to death? Hospitals and mortality, 1700–1850. In P. Mathias (Ed.), Science and Society 1600–1900 (pp. 97–110). Cambridge University Press.
Vallgårda, S. (1999). Who went to a general hospital in the eighteenth and nineteenth centuries in Copenhagen? European Journal of Public Health, 9(2), 97–102. https://doi.org/10.1093/eurpub/9.2.97
van der Burgh, E., Bolt, T., & Futselaar, R. (2022). Patiëntendossiers en privacy in de medische geschiedschrijving [Patient files and privacy in medical historiography]. History, Health & Healing, Stichting Historia Medicinae, Erasmus University and Erasmus MC.
van Straaten, J. (2024). The Stadsziekenhuis and its patients. Patterns in patient admission and mortality between 1867 and 1915 in Hoorn [Unpublished master's thesis]. Leiden University.
von Bueltzingsloewen, I. (1994). Pour une sociologie des populations hospitalisées: Le recours à l'hôpital dans l'Allemagne du premier XIXe siècle [Towards a sociology of hospitalised populations: The use of hospitals in early nineteenth-century Germany]. Annales de démographie historique, 1994, 303–316. https://doi.org/10.3406/adh.1994.1874
Warner, J. H. (1999). The use of patient records by historians — Patterns, possibilities and perplexities. Health and History, 1(2/3), 101–111. https://doi.org/10.2307/40111336
Downloads
Published
Issue
Section
License
Copyright (c) 2026 Nadeche Diepgrond

This work is licensed under a Creative Commons Attribution 4.0 International License.